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Cystic Fibrosis Trust
Cystic Fibrosis is an inherited disease which affects about 6,000 young
people. It was a disease first recognised in young children in the 1930's.
The much improved diagnosis and treatment available today has given babies
with CF a better survival rate, with 75 per cent reaching adulthood. The
treatment includes a daily session of physiotherapy and food supplements.
Although some two million people in the UK carry the faulty gene which causes Cystic Fibrosis, they may not develop any symptoms, and children of both parent carriers have only a one in four chance of developing CF.
The Cystic Fibrosis Trust was founded in 1964 to support hospital treatment
and research into prevention of CF. It also provides a network of support and advice groups for people with CF and their families. It has so far committed more than £20 million to scientific research and clinical care services. The Trust has promoted the first trials of gene replacement therapy in two London hospitals, after succesful correction of the gene defect in laboratory testing, using mice as a model for human gene transfer. The Trust Family & Adult Support Service handles more than 6,000 enquiries every year, giving advice and information to patients and medical staff. Dedicated to the special needs of adults and families affected by CF, the service deals with issues of practical, financial and emotional support.
You can support the Cystic Fibrosis Trust, which is a national charity based
in Bromley, through local fund raising events, by making a donation as an
individual or a business. Even a small donation is always welcome and you can
join your local CF Trust branch to keep in touch with events in your area.
For further information, write to the Trust at 11 London Road, Bromley, BR1
1BY, or telephone 020 8464 7211.
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